Friday, February 20, 2009

The Results

We got the call today with the results from the CVS test. I know a lot of you have been wondering if we have heard so I thought I would post...

We learned that there is a chromosome abnormality and that it is indeed Turner's Syndrome. If you don't remember, that is where there is a 99% chance of miscarriage. If I get past 26 weeks, I am considered to be in the 1%. The effects of Turner's Syndrome typically will not be noticed by anyone who does not know. For example, one of the effects is being shorter than average-- the child will most likely not be taller than 5 feet. (My mom should enjoy someone her own size now!) :) The child--if we get to delivery--has the full potential to live a long, healthy and normal life.

And, we found out that we are having a GIRL.

Ultimately, we feel this news is a mixed blessing.

I have felt for a while that I will not loose this baby, so initially, when she said it was Turner's and that signalled the 99% chance of miscarriage, I was confused with the feelings I had felt so strongly earlier. I thought, the FACTS of the matter are we will loose this baby to a miscarriage. BUT, I KNOW facts are not faith based.

I think the hardest thing about receiving this news is that I was mentally prepared (and convinced) that it would either be Down Syndrome or no abnormality. When Taylor and I spoke about what could happen, we knew Turner's was an option, but we never thought or talked about the chance that it would be Turner's. Never. So the news really did come as a shock. The genetic counselor continued to go on after giving me the news and I honestly don't remember a word she said.

So, you ask, how are we doing? A few hours ago that question most likely would have triggered the tears. But you ask me now, now that the news has been received and absorbed, we are doing good. We have the knowledge and support we need to get through this. We know and we believe that if we do loose this baby to a miscarriage, we will have the opportunity to raise that sweet little girl in the eternities. And that gives us great peace and comfort.

We also know that we will accept the Lord's will. We know that He is in control and if we put our FAITH and TRUST in Him, all will be ok. We know that. And because we know that, we are doing ok. Does it make it easier? No. But He never said it would be easy, He just said it would be worth it....and that, I do believe.

We are also lifted up by the incredible support and love we have felt from our friends and family....the care and the interest from those around us has truly made a difference in our lives throughout this experience. The prayers, the fasting, the calls, the messages.....have all meant so much to us and has helped us get through this and for that we are sincerely grateful to you.

We know we will get through this. We know that whatever happens will be God's will and that whatever happens is what is supposed to happen and knowing that has brought us the peace we need at this difficult time.

I remain hopeful and full of faith that we will be in that 1%. I believe miracles happen everyday. So for now, we take it one day at a time. The 20 week ultrasound will tell us a lot....so we pray that the cystic hygroma will resolve itself and disappear, because that will truly help our odds. If the cystic hygroma gets worse--which the ultrasound will tell us--the chances of having a stillbirth are likely. (Most likely, if it gets worse it is because there would be an excess of fluid building up around the baby). So please, pray with us now, that the cystic hygroma will resolve itself.

30 comments:

Anonymous said...

Taylor and Val
We have been with you in spirit and prayers from afar. We feel the love you have for this little girl and we too know that the Lord is in control and that you are so strong you can and will be the best parents for this little girl. Our prayers will continue to be with you and please know of our love for you.
Chris and Debi

Clayn said...

Bless Your Heart! You are truly amazing! I have to say that I truly do believe in miracles & they do happen. The Lord does know what is best for us & most of the time the learning process is not easy, however it truly does strengthen us & draws us closer to him. Just know that you are in our thoughts & prayers. Hang in there!
Love ya Melissa

Tiff said...

val..i don't know what to say except i'm so sorry and i love you so much!!

Megan and Jonny said...

Val, you are amazing. If there's anything I learned from all that time living with you, it's that you are an incredibly strong and faithful woman. I KNOW everything will work for your benefit. Our prayers are with you!

Lamoreaux Family said...

You guys are in our prayers!

Unknown said...

Thanks for the update, I have been thinking of you guys a lot. You're such a strong family and have the perfect outlook on everything that is happening. My prayers are with you.

Troy, Erin and baby Boston said...

Thank you for the update. Troy and I have been thinking about you guys a lot. We will keep you in our prayers.

Dan and Katie said...

You guys are definitely in our thoughts and prayers. Your strength and faith are a lesson to us all!
Katie and Dan

Holly said...

Your family, and especially your little girl, will continue to be in our prayers. Thank you for sharing this experience with us, and thank you for sharing your strength and testimony. You are an example to us all! We believe in miracles, and we know that the Lord is in control. We love you! Hang in there!

Anne said...

I will be praying for your miracle.

Unknown said...

Val and Taylor-
I believe in miracles also! I know that because your faith is so strong that you will get through this. Although being positive is a challenge it is certainly the best thing for you and your little girl. I will keep you in my thoughts and prayers....you are SO strong!

Joseph and Lauren said...

Valerie, So sorry to hear of the struggles with your pregnancy. I am sure it has been a trial for you and Taylor both. What is hard about our trials is there is little we can do to change the outcome. It must be accepted and embraced. The Lord is so mindful and aware of the situation. He see's every tear you shed. I know there is nothing I can say that will make the trial go away, but if I can give you a quote I recently read off of my friend's blog... "The gospel doesn't take the pain away, it only makes it easier." That gives me great comfort. Thank heavens for the Gospel of Jesus Christ.

allirasmussen@gmail.com said...

Thanks for your update, I have been thinking about you guys lots. Your testimonies are strengthening to those around you!

Cori said...

Wow Valerie, I have nothing but admiration for you right now (I always have). Your attitude and strength from what you wrote is such a example to me of how my attitude should be. We have been praying for you and thinking about your family constantly and we will continue to do so whenever you need. Congratulations on a GIRL. Love you lots!

keli b said...

Faith is a powerful tool and we do believe in miracles. You are in our thoughts and prayers. We love you guys.
Ryan and Keli

Jessi, DJ, Annica and Eli said...

Oh Val! Such faith you have, and so truly blessed you will be. What ap recious child this is of our heavenly father. And he has so much trust in you as you have faith in him. We will pray for you every day, as we have been since finding out that there have been difficulties. Or thoughts, our hearts are with you and how I wish We could still live close so that I could be there for you, btu iam so glad you are in colorado with your family. YOU are right, miracles DO happen, through our Lord and Savior Jesus Christ. And I know he will be ther for you!
love you!

Leslie said...

Valerie, you are truly amazing.

You and your family will be in my prayers.

Sam said...

Val,
I have been thinking about you a lot and I'm so sorry for what your going through. Life is tough sometimes but your attitude about all of this is amazing! Doesn't it make you appreciate the child you have so much more and realize life is precious. I will keep you in my prayers, keep me updated!! I love you!

Anonymous said...

Dear Taylor and Valerie,

My mom told me recently that there might be some genetic difference with your baby. I just want to say that having my brother, Jon, has been one of the greatest blessings our family has received. We had him stay with us for two weeks in the fall and he is a joy. He has made us cry, laugh, and grow. Michael and I recently hosted two Special Olympians from Sweden who have Down's Syndrome. Many of our friends and neighbors hosted athletes with other disabilities. We all were left feeling the true great worth and "specialness" of all of these people. They are great spirits. If are blessed with the life of this baby, she will be a great blessing to you, I am sure of it! We love you and will remember you and her in our prayers. Lots of love, Melanie and Michael

Luke and Ali Stewart said...

I can't even find the words to say right now. I will keep you guys in my thoughts and prayers. I am so sorry and I hope for nothing but the best for you guys. Good luck.

Brady & Lisa Bloxham said...

Val, you are an amazing lady to have so much faith!! I sure think you are a wonderful person! Im sure thankful to belong to a church that believe in families are forever, faith, and the power of prayer. I hope everything will turn out wonderful for you. Know that you are in my thoughts and prayers. Take care and keep us posted.

I really do respect you guys for keeping your head up so well. I guess its nice to know that at least the Savior knows what you are going through.

Mike and Anna said...

You are so strong! I found your blog and am so excited to read about your life! I wish you all the best with this pregnancy! By the way, your little family is just so cute!

The Wright Family said...

Thanks for the update, please know that you continue to be in our thoughts and prayers.

Joey, Amber, Ken , Ellie, Bruce and Patrick said...

Valerie,

You probably don't even remember me, but I clicked on your blog when Megan put her links back up.

I just wanted to let you know that you and your baby are in my prayers. Good luck with everything.

Amber Bowden

Joe and Monica DuPaix said...

we love you guys. you are an amazing and strong couple. we are thinking about you. thanks for the update. you are in our prayers--monica and joe

Tim and Jennifer said...

Hey Val,
Saw your status update on Facebook. Just wanted to say that you are loved and will be in my prayers. We went through a scare with Kyle, he had a cyst on his brain during the beginning of my pregnancy. Miraculously it went away but I know your heartache must be strong, while at the same time your testimony is even stronger. Hang in there. You have a beautiful family!
Jennifer (Ashleigh's old roommate)

bekahjr said...

We're praying for you too Val! and for your sweet baby girl!

The Jensen Family said...

Aw Valerie! Our prayers are with you!!!

Steve and Julie said...

Dearest Taylor and Val,
I can only imagine what a roller coaster you guys have been on. Your faith is an inspiration and I add to it that this little girl is indeed yours eternally. Let the tears flow when you need to, Val. Love those boys of yours, and thank you for inspiring all of those around you as you always have. We will indeed pray for your miracle! We love you!
Julie and Steve

Lisa said...
This comment has been removed by the author.